Project Manager - Swiss Registry for Rare Diseases

About the job

Project Manager - Swiss Registry for Rare Diseases

Start of work

01.02.2027 or by arrangement

Employment relationship

fixed-term

Institute / Workplace

Institute of Social and Preventive Medicine (ISPM)

About us

The Institute of Social and Preventive Medicine (ISPM) at the University of Bern is active in research, services, and teaching in public health, clinical epidemiology, biostatistics, and international environmental health. www.ispm.unibe.ch
An estimated half a million people live in Switzerland with a rare disease. Nevertheless, nationally available data on diagnoses, disease courses, therapies, and the needs of those affected are still lacking. However, this information is crucial to improve care and to advance research in a targeted manner. This is where the Swiss Registry for Rare Diseases comes in. Under the leadership of Prof. Dr. med. Claudia Kuehni, a dedicated registry team works together with hospitals, patient organisations, Orphanet Switzerland, and kosek to build this data foundation. The registry creates important bases for care and research. In the future, it should enable studies and facilitate participation in research projects for those affected.

Tasks and responsibilities

• Operationally manage the SRSK and further develop it together with the registry management
• Complete amendment for the ethics committees and consortium agreement with university and cantonal hospitals
• Further develop project logistics coordination in collaboration with university and cantonal hospitals (e.g. data collection, data transfer modalities, SOPs, data quality assurance)
• Further develop the database in close cooperation with IT specialists
• Develop strategies for sustainable financing, manage finances
• Expand exchange with federal offices, university and cantonal hospitals, and patient organisations
• Conduct public relations (conferences, annual reports, webpage, etc.)
• In the medium term, collaborate on research projects based on the registry data

Requirements profile

• University degree in medicine, epidemiology, public health, life sciences or related fields
• Several years of experience in project management in healthcare, clinical research or registry area
• Knowledge of regulatory requirements in research (e.g. Human Research Act, data protection)
• Experience in some of the following areas: ethics applications, agreements, reports, project proposals, and scientific publications; databases, data collection and data analysis
• Strong communication skills and enjoyment in exchange with medical professionals, authorities and patients
• Fluent German and English; French skills are an advantage
• Structured, independent and solution-oriented working style as well as enjoyment of appreciative teamwork
• Willingness to take responsibility and actively advance the registry

Your benefits

Exciting work in a dynamic team closely networked with research and services

Healthy corporate culture and good working atmosphere

Team-oriented work

Central location in the heart of Bern

Working at UniBE

The University of Bern offers not only exciting tasks but also an environment that actively promotes development, diversity and equal opportunities. Discover what distinguishes us as an employer and how you can progress with us.

Application and contact

Please send your application by 18.11.2026 to Natalie Studer

Questions about the position?

Cheryl von Arx
cheryl.vonarx@unibe.ch

Questions about the application?

Natalie Studer
hr.ispm@unibe.ch